Nystagmus Network
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Nystagmus Awareness Day - 20 June
Who to contact
- Contact Name
- Nystagmus Network
- Contact Position
- Executive Information and development manager
- Telephone
- 01427 718093 01427 718093
- info@nystagmusnet.org
- Website
- Nystagmusnet website
- Scan to visit this website
- nystagmusnetwork
- Notes
Contact
Website: www.nystagmusnetwork.org
Email: info@nystagmusnet.org
Tel: 01427 718093
Address: 70 Hyde Vale London SE10 8HP
Social media
Linkedin: Linkedin.com/nystagmusnetwork
Twitter: Twitter.com/NystagmusUK
Facebook: Facebook.com/NystagmusNetwork
Instagram: Instagram/NystagmusNetwork
Where to go
- Name
- Nystagmus Network
- Address
-
70 Hyde Vale,
London
London
- Postcode
- SE10 8HP
- Notes
We operate an online support and telephone service with Zoom meetings. Our website contains a wealth of free information which is easy to access at no cost.
Time / Date Details
- When is it on
- Office hours daily. 24/7 website support
- Time of day
-
Afternoon
Evening
Morning - Session Information
-
Monthly zoom meetings and telephone access 9/5 weekdays
Costs
- Details
- Service completely free to use
Availability
- Referral required
- No
- Referral Details
Self referral via website or email/telephone
- Other notes
Please consider including our Organisation in your Local Offer
DBS Checks
- Have staff or volunteers been DBS (CRB) checked?
- Yes
- Additional Information
Every team member is DBS checked