Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to. 

Nystagmus Awareness Day - 20 June

Who to contact

Contact Name
Nystagmus Network
Contact Position
Executive Information and development manager
Telephone
01427 718093 01427 718093
E-mail
info@nystagmusnet.org
Website
Nystagmusnet website
Scan to visit this website
Twitter
nystagmusnetwork
Notes

Contact

Website: www.nystagmusnetwork.org 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Address: 70 Hyde Vale London SE10 8HP

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

Where to go

Name
Nystagmus Network
Address
70 Hyde Vale,
London
London
Postcode
SE10 8HP
Notes

We operate an online support and telephone service with Zoom meetings. Our website contains a wealth of free information which is easy to access at no cost.  

Time / Date Details

When is it on
Office hours daily. 24/7 website support
Time of day
Afternoon
Evening
Morning
Session Information
Monthly zoom meetings and telephone access 9/5 weekdays

Costs

Details
Service completely free to use

Availability

Referral required
No
Referral Details

Self referral via website or email/telephone

Other notes

Please consider including our Organisation in your Local Offer 

DBS Checks

Have staff or volunteers been DBS (CRB) checked?
Yes
Additional Information

Every team member is DBS checked

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