PANS PANDAS UK
PANS PANDAS UK are a registered charity offering support and education in relation to the conditions PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections).
PANS and PANDAS are a set of neuropsychiatric conditions which are triggered by a misdirected immune response, resulting in the inflammation of the brain.
PANS (Paediatric Acute-onset Neuropsychiatric Syndrome)
PANS requires a clinical diagnosis and there are no specific tests which will prove or disprove the condition. In order for a diagnosis to be made, presentation of the following symptoms must occur:
An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD) or severely restricted food intake along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder.
- Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes)
- Emotional lability and/or depression
- Irritability, aggression, and/or severely oppositional behaviours.
- Behavioural (developmental) regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety).
- Sudden deterioration in school performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills)
- Motor or sensory abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture).
- Insomnia and/or sleep disturbances
- Enuresis and/or urinary frequency
- Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of psychosis and/or hallucinations.
- Dilated pupils are also widely reported in children with PANS or PANDAS
Who to contact
- Contact Name
- Vicky Burford
- Contact Position
- Charity Secretary
- PANS PANDAS UK website
- PANS PANDAS UK Facebook
View our Facebook support group for parents or carers looking after a child affected by the conditions.
We also have an Adults Facebook support group for adults who are affected by the conditions.
- Referral required