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PANS PANDAS UK

PANS PANDAS UK are a registered charity offering support and education in relation to the conditions PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections).  

PANS and PANDAS are a set of neuropsychiatric conditions which are triggered by a misdirected immune response, resulting in the inflammation of the brain.

PANS (Paediatric Acute-onset Neuropsychiatric Syndrome)

PANS requires a clinical diagnosis and there are no specific tests which will prove or disprove the condition.  In order for a diagnosis to be made, presentation of the following symptoms must occur:

Diagnostic Criteria

An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD) or severely restricted food intake along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder. 

  • Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes)

  • Tics

  • Emotional lability and/or depression

  • Irritability, aggression, and/or severely oppositional behaviours.

  • Behavioural (developmental) regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety).

  • Sudden deterioration in school performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills)

  • Motor or sensory abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture).

  • Insomnia and/or sleep disturbances

  • Enuresis and/or urinary frequency
  • Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of psychosis and/or hallucinations.

  • Dilated pupils are also widely reported in children with PANS or PANDAS

 

Who to contact

Contact Name
Vicky Burford
Contact Position
Charity Secretary
E-mail
secretary@panspandasuk.org
Website
PANS PANDAS UK website
Twitter
@PandasPans
Facebook
PANS PANDAS UK Facebook
Notes

View our Facebook support group for parents or carers looking after a child affected by the conditions. 

We also have an Adults Facebook support group for adults who are affected by the conditions.  

Other Details

Availability

Referral required
No
Last updated: 02 Mar 2021